Since i haven't written in a while I figured I would do the first post with boring updates! Basically medical updates on the kiddos so that you all would know the happenings here and how to pray more specifically for our sweet babies(:
All three kiddos are going to the doctor tomorrow (I will definitely get myself a coffee for that! ha). Joey and Madi are having their regular well checkups, but I am afraid at least one of them will need shots...no bueno! Emily will be having her iron level and zinc level checked because we are still having issues with PICA (eating non food substances). We will first make sure, again, that there are no mineral difficiencies and if that is clear then our Dr. believes it might have evolved into a behavioral issue. Not that she does it for attention (she actually likes to do these things very privately), but as more of a coping skill. I don't know much about it yet but will keep you all posted after tomorrow(:
Madi is doing very well...she is growing up so fast! She has had two new spots on her head from the alopecia. They showed up 2 weeks ago and all of the hair is gone. Both spots are probably about 1 1/2 inches in diameter. But we have been putting the cream on them and there are already some hairs growing back(: I don't really know how this new occurence affects her percentage of growing out of this but I will know after Friday. She is such a trooper about the whole thing. Before I could just rub the cream on and she was none the wiser. But now, she doesn't miss a thing and asks lots of questions. She will tell people that the hair is gone but that the medicine is working and it is already growing back. My kids bravery amazes me sometimes...we are very blessed!!
Big man has his MRI next Wednesday, May 6 at 7am. We have to be there at 6am...ugh! Please pray for him on this day. Each MRI gets tougher because he knows what is coming (the needle for sedation) and he gets very scared. He is a very brave boy but he is like his mommy when it comes to needles!! Everything else with his NF is going well. He does fantastic in school, hasn't had any new neurofibromas (he currently has 6 small ones), or any other painful signs/affects of the disease. He has lots of new cafe au lait spots but those don't mean anything(: I am very greatful to our sweet Heavenly Father for His constant protection of Joey in this disease.
That is it on the medical stuff. Please continue to lift up our sweet babies in prayer and i will keep you all posted with any new news. Now time for the fun stuff like pictures!!